Privacy statement

This privacy policy is about how the Brain Tumor Consortium collects and uses personal information that we receive from users of our websites, services and offers as well as how we process such information. Personal data means information that can be linked to private individuals. The Brain Tumor Consortium processes personal information about members, donors, volunteers, course participants as well as about people affected by cancer and relatives who receive assistance and services from the association. Special measures have been taken for the processing of sensitive personal data, for example health data, which will naturally be shared in some of our offers. The processing, which is both electronic and on paper, is carried out in line with the Personal Data Act, including the EU’s privacy regulation and associated regulations. This includes technical and administrative measures, regulations and competence of employees and volunteers. The Personal Data Act gives all registered users the right to demand information about which personal data has been registered about you, as well as a demand that incorrect, incomplete or information that is not permitted to be processed is corrected, deleted or supplemented. For questions you may have about our processing of your personal data, you can contact us at:

Why do we collect personal data and what kind of information do we collect?

We collect and use your personal data for various purposes depending on who you are and how we come into contact with you. Below you will find information about the purposes for which we collect and use your personal data.

Disclosure of personal data to others

We do not pass on your personal data to others unless there is a legal basis for such disclosure. An example of a legal basis would be a consent from you or a legal basis that requires us to release the information.


We store your personal data with us for as long as is necessary for the purpose for which the personal data was collected. This means, for example, that personal data that we process on the basis of your consent will be deleted if you withdraw your consent. Personal data we process to fulfill an agreement with you is deleted when the agreement has been fulfilled and all obligations arising from the contractual relationship have been fulfilled, unless otherwise agreed.

Your rights when we process personal data about you

You have the right to demand access, correction or deletion of the personal data we process about you. You also have the right to demand limited processing, object to the processing and demand the right to data portability. You can read more about the content of these rights on the Norwegian Data Protection Authority’s website: To exercise your rights, you can contact us by email “kontakt@nbtc.n0”. We will respond to your inquiry to us as soon as possible, and at the latest within 30 days. We will ask you to confirm your identity or provide additional information before we allow you to exercise your rights with us. We do this to be sure that we only give access to your personal data to you – and not to someone pretending to be you. You can withdraw your consent to the processing of personal data by us at any time.


If you believe that our processing of personal data is not in accordance with what we have described here or that we are in breach of privacy legislation in other ways, you can complain to the Norwegian Data Protection Authority. You can find information on how to contact the Norwegian Data Protection Authority on the Norwegian Data Protection Authority’s website (


If you believe that our processing of personal data is not in accordance with what we have described here or that we are in breach of privacy legislation in other ways, you can complain to the Norwegian Data Protection Authority. You can find information on how to contact the Norwegian Data Protection Authority on the Norwegian Data Protection Authority’s website (

Online processing of personal data

We have various managers who have day-to-day responsibility for the various portals and solutions for the Brain Tumor Network’s online processing of personal data.

Information cookies/cookies

We use cookies to increase the user-friendliness of the site. The term cookies includes pixel codes, web beacons and visible GIFs and other similar technologies.

What are cookies and what are they used for?

The brain tumor network uses cookies, like most major websites, and in accordance with Norwegian legislation. A cookie is data that is stored in your browser so that the website can recognize you from page to page and visit to visit. For more general information about cookies, you can read here.

What information is stored?

The brain tumor network uses so-called first-party cookies in order for the functionality on the member pages to work. The purpose of the first-party cookies is to recognize who you are so that you get more relevant content, and that logging in is easier. If you block the first-party cookies, the member pages will not work.

  • Cookies
  • Sessions
  • Third part cookies

What is stored? The email address + a unique code linked to the logged-in user.

Who processes the information at the Brain Tumor Network?

In order for us to be able to adapt our websites to you, our partners use third-party cookies to track your movements when you are on our pages. The Brain Tumor Consortium also uses the information to analyze how the pages are actually used, so that we have better conditions for making improvements. Cookies that are stored: dc_gtm_*, _ga

What is stored?

Reference to which tracking script setup the page should use. Your actions on the website, excluding sensitive information such as social security number and credit card number. Who processes the information?

Who processes the information at the Brain Tumor Network?

Google Tag Manager Google Analytics

The peer service.

The peer service is offered by the Brain Tumor Consortium to anyone who has questions or wants to talk about the topic of brain tumours. We offer advice, guidance and support talks about brain tumors and about rights through telephone, chat, e-mail, brochure material and personal attendance. The Equal Person Service’s services are operated by affected people and relatives who have experience of living with brain tumours.

Support the Brain Tumor Association

Donations to the Brain Tumor Consortium can be made through Facebook collections, direct support via Vipps or transfer to a gift account, or through funeral homes. A data processing agreement has been entered into with the provider of the collection service for the funeral homes. Pages, or fundraisers, are not private, nor is it an option. When you donate money, you as the donor can choose whether this gift should be anonymous or not.

The brain tumor network in social media

The brain tumor consortium has an active account in the following social media: Facebook, (@Hjernesvulstkonsortiet) and YouTube. We also manage the Facebook page, Facebook groups for regional teams and special groups. The presence is important for the organization in several areas, including user participation, dialogue with patients, relatives and other stakeholders, dissemination of information and fundraising. The administrator(s) of our social media are obliged to familiarize themselves with the current regulations and follow the Brain Tumor Network’s current routines and procedures for the collection and management of all personal data. We monitor and respond to inquiries on our social media during working hours. We remove public comments that contain sensitive personal information about an identified third party and encourage our followers to exercise common sense and understanding of the internet’s reach in what they choose to publish on social media. We can assist in handling information you leave with us, but further sharing is beyond our control. We therefore ask you to think twice before sharing personal information openly online.

Case management and archive

The Brain Tumor Network processes personal data in order to fulfill the Authority’s statutory tasks in accordance with the regulations applicable at all times, e.g. personal data act and archives act. Different types of personal data are registered in the archive and case management system. This is information such as name, address, telephone number, email address and other relevant information that appears in the inquiry. Registration, storage and retention takes place in accordance with archive legislation. The case documents may also contain sensitive personal information.

Date of birth and social security number

You have the option of registering your birth number in connection with gifts given to the Brain Tumor Network. The gift and the birth number are reported to the Norwegian Tax Agency, so that you get a tax deduction for gifts. It is voluntary to provide your national identification number, but without this you cannot get a tax deduction. The information is stored in our donor database.

Telephone inquiries and e-mail

By contacting Hjernesvulstkonsortiet at, this happens via normal unencrypted e-mail. It is therefore important that documents containing sensitive information are not sent by e-mail. This applies to all e-mails to employees and volunteers in the Brain Tumor Consortium. In the case of inquiries by telephone, the telephone number from and to, as well as the time of the conversation on their telephones, is logged for 30 days. There is no other systematic recording of telephone calls where the caller can be identified.